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The largest kidney patient charity in the UK. Run by kidney patients, for kidney patients.

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Black and Minority Ethnic kidney patients at greater risk

Embargoed until 4 pm on 7 March 2012

A Manifesto to improve kidney donation and transplantation within Black and Minority Ethnic communities in the UK was launched at the House of Commons on 7 March 2012 by Robert Buckland MP, Chair of the All Party Parliamentary Kidney Group.

Kirit Modi and Robert Buckland MP at the Manifesto LaunchKirit Modi, Vice-Chair of the National Kidney Federation warmly welcomed the publication of the Manifesto and said:

“The Manifesto clearly identifies the huge difficulties BME kidney patients face in this country and sets out actions we need to take to urgently tackle this complex issue and save lives. Over a quarter of the patients waiting for a kidney transplant are from BME background but only 3% of those signed up to the Organ Donor Register are from BME communities. The average waiting time for someone from an Asian or Black background is about 30% longer than that for a white patient. The consent rates from close relatives of potential BME donors are significantly lower than white donors. The overall situation is worrying. Despite some improvements over the last three years, the outcomes for BME kidney patients have not changed significantly. The situation is likely to get worse with the projected growth in our population as well as a demographic shift to longer life expectancy in this country”.

The Manifesto sets out four strategic challenges supported by twelve specific actions. The four strategic challenges are:

  • Everyone involved in providing services to renal patients to take ownership of the urgent need to improve organ donation and transplantation rates for BME patients and to establish an inclusive leadership arrangement at a national level.
  • All service providers to review what they are currently doing to meet the needs of BME kidney patients and to determine what more they can do.
  • Improve partnership working between service providers and BME religious and community groups and to nationally monitor progress.
  • Improve data collection and analysis on ethnicity and religion so that we can target resources where most needed.

Kirit Modi added:

“On behalf of the NKF, I am today asking Andrew Lansley to respond positively and urgently to this Manifesto. I am also urging everyone involved in providing renal services, including hospitals, GPs, NHSBT, kidney charities and research bodies to consider the implications of the Manifesto for them and to work in partnership to address this challenge. I am also requesting all BME religious and community groups to develop stronger partnerships with renal service providers to address the specific issues within their communities. The NKF is ready to provide support in any way it can to implement the actions set out in the Manifesto and will continue to work closely with the All Party Parliamentary Kidney Group in its important role in this area.”

Notes

  1. A copy of the Manifesto is available at http://www.kidney.org.uk/documentlibrary/APPKG-BME_manifesto.pdf
  2. Kirit Modi is a kidney transplant recipient who received a live kidney from his wife over 10 years ago. He is of Indian background and works closely with the Hindu communities in the UK. He has been the Vice-Chairman of the NKF for the last two years. His contact details are kiritmodi1@hotmail.com or 07929778440.
  3. The NKF can be contacted through National Helpline on 0845 601 02 09 or helpline@kidney.org.uk.
  4. Robert Buckland MP can be contacted at the House of Commons on 0207 7219 7168.
  5. The Manifesto will be launched at the House of Commons on 7th March 2012 at 4pm.
  6. Photographs from the launch will be available from the NKF on 8 March 2012.

See also www.better-health.org.uk/briefings/achieving-equality-organ-donation-and-transplantation-uk-challenges-and-solutions on Race Equality Foundation’s Better Health website.