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Spring 2017 issue
            IN THIS ISSUE                                       14                              22




             4   All Party Parliamentary Kidney Group meeting
                 A drive to improve living donation rates

             7   NKF AGM and KPA Day 2017 – come and
                 join us

             8   As a kidney patient what can I hope for from
                 my private pension

             10  ‘Give a kidney – one’s enough’ Celebrate the   Message from the Chairman
                 500th altruistic kidney donation              2017 is upon us already.  It only seems like yesterday

             14  Walking for Adam by Mark Smith                that we were all in Blackpool at the 2016 NKF
                                                               Patients’ Conference.
             17  What is the UK Renal Registry?                Personally, I am expecting a mixed year for the kidney
                                                               patient community in general. Details of the change
             20  Medical Matters                               to our relationship with the EU are still to be finalised
                                                               and whenever this type of uncertainty exists general
             23  Germany 40 England 35 by Bob Price            confidence tends to be dented. Kidney patients are
                                                               not immune to this unease, particularly as health care
                                                               spending on renal disease is one of the highest in
                                                               the NHS budget.   So it will be NKF’s job this year,
                                                               on your behalf to closely monitor events as they
            Hello friend. If you do not already                unfold and work even more closely with Kidney
            receive your own issue of Kidney Life free of charge   Patient Associations in 2017 to ensure that
            each quarter, please get in touch with us (NKF HQ   any proposed changes are highlighted and
            contact details below).  We will be happy to arrange   necessary action taken.
            for you to receive your own copy so that you too can   On behalf of us all here at NKF I hope you enjoy
            keep up to date on what is going on in our life.   a happy and as healthy a 2017 as possible.
                                                               David Marshall
                                                               NKF Chairman
            Have you got an interesting personal story to share                    David Marshal, NKF Chairman
            with the other 27000 readers of Kidney Life?  If so we
            would love to hear from you. All contributions for the   NKF would like to thank the following for their
            summer issue of Kidney Life need to be with us by no
                                                                 continued sponsorship of Kidney Life:
            later than 2nd April 2017.
            Editor - Deborah Duval, Assistant Editor – Sue Lyon  Abbvie        Baxter     Novartis   Sandoz
                                                                 Amgen         Chiesi     NXStage    Sanofi
                                                                 Astellas      Fresenius  Quanta
            Stop Press - Channel 4 is looking for two
                                                                 B Braun Avitum  Kimal
               family members or two close friends who are about
                to embark on a living kidney donation work-up
                      programme.  If you are about to start this
                      process and if both of you feel happy to   NKF Officers
                      be interviewed and filmed as the process   Chairman        David Marshall    SAKA
                      progresses please let us know.  Please
                                                                 Treasurer       William Beale     Bristol Area KPA
                     send an email to NKF@kidney.org.uk or call
                                                                 Secretary       Denny Abbott     Gloucestershire KPA
             the Helpline to give us your name and contact details
            and we will pass these to the programme producer.    Chief Executive   Tim Statham OBE
                                                                 President       Ken Tupling
                             Registered Office:
                                                                 Patrons         Lawrence Keogh and Nina Wadia
                             The Point, Coach Road, Shireoaks,
                             Worksop, Nottinghamshire S81 8BW
                             T: 01909 544999  F: 01909 481723    NKF Officers and Executive members do usually belong to a
            KIDNEY PATIENTS UK
                             e: nkf@kidney.org.uk                KPA, but offer their services to NKF as individuals.  As such
                                                                 NKF recognizes that views expressed by its Officers and
            Charity No. 1106735
                                                                 Executive members are expressed as individuals and do not
            Co. No. 5272349 reg. in Eng. & Wales
                                                                 necessarily represent the views of their KPA.
            Give as You Earn contribution No. CAF.GY511
            www.kidney.org.uk
            HELPLINE 0845 601 02 09                                       If you require a larger print or audio version of the issue,
                                                               HELPLINE  0845 601 02 09   www.kidney.org.uk   Spring  2017   3
                                                                          these are available by contacting the NKF Helpline on
                                                                          0845 601 02 09 (calls from UK landlines are free of charge)
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