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The largest kidney patient charity in the UK. Run by kidney patients, for kidney patients.

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Eculizumab approved by NICE for aHUS kidney patients

Following a meeting between patient and family members of those who suffer the ultra rare kidney condition aHUS with the All Party Parliamentary Kidney Group (APPKG) representations by members of the APPKG were immediately made resulting in yesterdays announcement ( 29.01.2015) that the expensive but life changing drug Eculizumab is to be prescribed to suitable patients on the NHS.  This drug has life changing beneficial effect, however it can cost up to £10 million pounds per patient. The NKF is proud to have assisted this small group of patients in their struggle for a fair outcome.