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The largest kidney patient charity in the UK. Run by kidney patients, for kidney patients.

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Invitation to join the Delphi panel

You are invited to join the international Delphi panel and will be asked to provide your expert opinion on the importance of different outcomes in kidney transplantation.

I would like to draw your attention to this important initiative which is seeking patients and health care professional views on appropriate clinical trial outcomes in kidney transplantation . Participation is open to all and I would hope that both NKF and local KPA members will take the opportunity the study offers to shape future clinical trial design .

The Standardised Outcomes in Nephrology – Transplantation (SONG-Tx) initiative aims to establish a set of core outcomes for clinical trials in kidney transplantation. The focus is on outcomes for kidney transplant recipients. The core outcomes will be developed based on the shared priorities of patients (with or without a kidney transplant), family members, health professionals, researchers, policy makers, and industry.

Establishing a core outcome set to be consistently measured and reported in trials in kidney transplantation will improve the integrity, transparency, usability and contribution of research relevant to people with a kidney transplant; and ensure that important outcomes are consistently reported across trials.

We invite you to join the international Delphi panel. You will be asked to provide your expert opinion on the importance of different outcomes in kidney transplantation.

The Delphi survey will include three short (5 to 10 minutes) surveys about three weeks apart during March to June 2016. In round 2 and 3, you will see your response and the results of the group. Your responses will be anonymous. Completion of all three rounds will ensure the reliability of the results. All panel members who complete the survey will receive a copy of the results.

To register, please fill in the form at http://songinitiative.org/index.php/songtxdelphiregistration/ Registration will close 31st March 2016.